Monday, July 23, 2012

A Strong Case for Preventive Primary Care

Heroic measures that come too late don't affect how people choose to live


By "angienadia," MD | in Physician

I was working in the Intensive Care Unit  the other day, and as I made the rounds I found that more than half of the patients there -- for lack of a better term -- brought the condition upon themselves.
I sound harsh, but there was no better way to put it. I was taking care of Mrs. B, a 60-year-old lady with COPD who called EMS for shortness of breath. As EMS readied to take her to the hospital, she said, “You all are gonna have to wait until I finish my cigarette.” She has been intubated many times for COPD exacerbation, visited the ICU a hundred more times. She said if she got out, the first thing she would do would be to smoke a cigarette, but she did not believe she would make it this time. After multiple weeks on continuous BIPAP with spurts of intubations in between, she told us to quit and let her die.

Looking around the ICU that day, there were multiple stories like her – a cirrhotic who was actively drinking despite his varices bleeding to death after 30 units of various blood products that turned out to be futile, a 20-year-old diabetic with recurrent admission for diabetic ketoacidosis who left against medical advice the minute he found out he would not get any intravenous dilaudid, a gentleman admitted with pulmonary edema every 3 days because he refused to go to dialysis.
As days passed, I realized that these patients were common – I was being trained to undo what these people did to themselves, so that they can leave the hospital to do it some more. Some has hurt themselves so many times it could not be undone, despite many resources wasted and much money spent. I watched 30 units of blood passed through one end of our patient only to flow right out another, and I wondered if there was not someone else out there who would not undo our efforts, our blood products, our precious resources.
More importantly, I wondered if we could ever draw a line, where we say enough is enough, where we say you do not get a second chance at life so that you can just kill yourself in the end, where we say there comes a point when heroic measures cannot cure how people want to live their lives. Before medical school I always thought that medicine was made to promote health, but in the light of reality I have learned that my job in the ICU today is really to prolong death, so that in the end people can crash and burn a bigger flame, taking much needed resources with them.
Mrs. B knew in her heart that smoking would be her death, yet smoking was the one thing she pined for. I wanted to tell Mrs. B that if she wanted to die, I was in no place to stop her. I might have had a shot as her primary care doctor before she picked up her first cigarette, but that time is long passed. In the end when the BIPAP came off, she became unconscious and passed away peacefully. I wanted to ask if we should have stopped sooner, maybe two intubations ago, but I will never know.
“angienadia” is an internal medicine physician who blogs at Primary Dx.



Thursday, July 19, 2012

Tell Us Your Story

EMR portal opens up opportunity to empower patients
By Emily Gibson

If you want to identify me, ask me not where I live,
or what I like to eat,
or how I comb my hair,
but ask me what I am living for,
in detail,
ask me what I think is keeping me
from living fully
for the thing I want to live for.
- Thomas Merton, writer, mystic, monk

As a patient waiting to see my healthcare provider, I would adapt Merton’s template of personal revelation as follows:

If you want to know who I am,
ask me not about my insurance plan,
or what is my current address,
or whether I have a current
POLST,
but ask me what I am most concerned about,
in detail,
ask me what I think is causing my symptoms
and what I think is keeping me
from eating healthy, exercising regularly, choosing moderation in all things
so that I can live fully
for the thing I want to live for.


As a physician in the midst of a busy clinic day, I struggle to know who my patients are beyond their standard medical history and demographics. One of my goals in our primary care clinic, now almost a decade into electronic medical record keeping, is to create a way for interested patients to provide their personal history online to us via our password secured web portal. These are the questions our clinic staff may not have opportunity to ask or record during clinic visits. Having the patient personally document their social history and background for us to have in the chart – in essence, telling us their story in their own word s– can be very helpful diagnostically and for individualizing the best treatment approach for each unique individual.
At my physician practice we are creating an “About Me” folder in the electronic medical record that would contain information the patient would provide online via their secure patient portal. It will be introduced once the patient signs onto their patient portal for the first time and views their online chart.
***
Tell us about yourself
This is your own personal history in your own words to be added to your electronic medical record in the folder “About Me.” You can edit and add information at any time via this secure patient portal to update it.
We want to know your story. Only you can tell us what you think is most important for us as your health care providers to know about you. We may not always have the time to ask and document these detailed questions in a brief clinic visit, so we are asking for your help.
Why do we want to know your non-medical background as well as medical background?
We evaluate a patient’s symptoms of concern but we also are dedicated to helping our patients stay healthy life long. To assist us in this effort, it is very helpful to know as much about you as possible, in addition to your past medical history. It is crucial also to understand your family background and social history. We want to know more about your personal goals, and what you think may be preventing you right now from living fully for the things you consider most important to you.
This is your opportunity to tell us about yourself, with suggested questions below that you can consider answering. This information is treated as a confidential part of your medical record, just like all information contained in your record. You can add more at any time by returning to this site.
  1. Tell us about your family, who raised you and grew up with you, and who currently lives with you,  including racial/ethnic/cultural heritage. If relevant, tell us whether you have biological beginnings outside of your family (e.g. adopted, egg donation, surrogate pregnancy, artificial insemination, in vitro fertilization) Provide information on any illnesses in your biologic family.
  2. List the states or countries you have lived in, and what countries outside the U.S. you have lived in longer than a month. Have you served in the military or another government organization, like the Peace Corps?
  3. Tell us about your educational and job background. This could include your schooling or training history, paid or volunteer work you’ve done. What are your hobbies, how do you spend your leisure time, shat are your passions and future goals. Where do you see yourself in ten years?
  4. Tell us about your sexual orientation and/or gender preference.
  5. Tell us about your current emotional support system—who are you most likely to share with when things are going very well for you and especially when things are not going well.
  6. Tell us about your spiritual background, whether you are part of a faith or religious community and if so, how it impacts your life.
  7. Tell us what worries you most about your health.
  8. What would you have done differently if you could change things in your life? What are you most thankful for in your life?
  9. What else do you feel it is important for us to know about you?
Thank you for helping us get to know you better so we can provide medical care that best meets your unique needs.
   ***
As this effort is a work in progress, I’m interested in hearing feedback from patients and healthcare providers. What additional questions would you want asked as part of personal history documentation in a medical record?
Electronic medical records allow us, as never before, the ability to share information securely between patients and their health care providers.
Patients want to tell us their story. It is time we asked them.
Emily Gibson is a family physician who blogs at Barnstorming.

Thursday, July 12, 2012

Politics Aside ....

How Will Health Reform Affect Patients and Providers?

By Policy

On the day the U.S. Supreme Court delivered its historic decision on the Affordable Care Act (ACA), aka Obamacare, I was rounding on my hospital patients: a man on the ventilator with pneumonia who had private insurance, one elderly woman with abdominal pain going for gall bladder surgery on Medicare, and one middle aged obese woman with a skin infection without any health insurance.
On my patients’ TV screens I watched our nation’s reaction to the decision. Some called for “repeal and replace,” while others felt vindicated.
Placing a stethoscope over my patient’s heart, I wondered how the court’s decision will affect us, as patients and doctors, and our health care system, which brings us together and includes the insurance companies and hospitals.
Undoubtedly, our opinions on the ACA are in large part aligned with our political affiliations. However, what if we put politics aside for a moment, and tried to understand the law. Over the past two years, I have referred to the nonpartisan Kaiser Family Foundation website, kff.org, which has simple-to-understand summaries.
Nearly 65 percent of us, like my patient on the ventilator with pneumonia, have private insurance through our employers or individual policies such as Blue Cross Blue Shield. What concerns us most are increases in our premiums, which have nearly doubled over the past decade.
I wanted to know, how would the ACA affect premiums? “It’s hard to tell,” said Cyril Chang, a health economics professor from the University of Memphis. “There are too many moving parts to the cost equation for an accurate prediction.”
My elderly patient going for surgery is nearly the age of my father, who is a cancer survivor and also has heart disease. And like 15 percent of Americans on Medicare, he is pleased that the ACA is closing in the “doughnut hole,” and that he does not have to make co-payment for preventive services such as colonoscopies or vaccines.
Yet, the cost will be offset by taxes such as an additional Medicare payroll tax of 0.9% on earnings over $200,000 for individuals and an investment-income tax for high earners.
The uninsured will benefit the most and will be angered the most by the Supreme Court decision. For my patient with the skin infection, health insurance at $15,000 per year for her and her family was unaffordable. Such working poor — 30 million of them — will benefit from ACA.
Yet, my landscaper will likely be angered because he will have to pay a penalty tax, which ranges from about $100 to $2,000 each year for being uninsured.
How will doctors and hospitals be affected by the decision?
In ways, providing insurance to millions through the ACA is like distributing discount movie tickets. However, the problem is that there are not enough seats in the theaters for everyone. Doctors, especially, primary care doctors, will face the greatest burden, and many may stop taking Medicaid, Medicare and possibly the insurances from the newly formed state-run Health Insurance Exchanges.
It will add to the frustration and chaos for patients unless our health care system quickly finds new ways to deliver quality health care.
While the ACA does not provide a single new way to deliver health care, it does provide the general guidelines: pilot projects with accountable care organizations and medical homes, which are innovative approaches to deliver quality care at lower cost.
What will happen to insurance companies?
I believe, this is where the ACA will have its greatest impact. Currently, if an uninsured pregnant woman in labor or a man with cancer came to the hospital in distress, the ER and ER physician cannot legally turn them away, however, insurance companies can, due to pre-existing conditions. Insurance companies can “cherry pick” healthy patients even if it is immoral and uncompassionate. The ACA changes this. After 2014, insurance companies will be mandated to accept all patients regardless of pre-existing conditions, gender, or age. In part, this is a trade-off for mandating all Americans to purchase insurance.
Insurance companies play another critical role. They are middlemen doctors, patients and employers. Under the ACA, they will be controlled under stricter regulation. A large chunk, 80 to 85 percent of premiums we pay to them, must go toward clinical services or else the money will be refunded back to us.
Many are fearful: Will ACA bankrupt America? The Congressional Budget Office, CBO, estimates the cost will be on average $94 billion dollars each year for a decade, which is 3.6% of the annual health expenditure.
The cost will be partially offset by fees to insurance companies, pharmaceuticals and taxes on high-income individuals and those who do not purchase insurance.
According to the CBO, the revenues and the cost will reach close to break-even.
Yet, I believe the estimated costs will likely exceed the projected costs. By how much is hard to tell. Without any health reform changes, health care costs have risen to about $2.6 trillion each year or 17 percent of our GDP.
As a doctor, the biggest question I have is, “How will the ACA impact the doctor-patient relationship?”
Will it make me spend less time with my patients? Will it make me order more or fewer tests? Will it make me limit my treatment options?
Hopefully not. In fact, pilot programs are encouraging providers to improve coordinated care and patient-centered care. Yet again, the ACA will fail in providing sufficient doctors for the large number of insured patients seeking health care. Finding a doctor will become difficult.
So when patients and friends ask me. “Is the Supreme Court decision good or bad?” I reply “It depends on your insurance and your political affiliation.” And then I come back to what Cyril Chang said. Our health system has too many moving parts, “implementing and improving” the present law may be as good or bad as “repealing and replacing” it.
Yet, all the details about the ACA only matter once we sidestep the political rhetoric, which neither political party is willing to do in an election year.
As patients and doctors we need to do this, because lives are on the line. The man on the ventilator is dying, the elderly woman had successful gall bladder surgery and the woman with the skin infection is going home.
Manoj Jain is an infectious disease physician and contributor to  The Washington Post and The Commercial Appeal, where this post originally appeared. He can be reached at his self-titled site, Dr. Manoj Jain.

Tuesday, July 3, 2012

Healthcare Reform: Talking to Patients and Staff

It wasn't easy to find a "just the facts" rendering of  the USSC ruling last week on the constitutionality of the Patient Protection and Affordable Care Act. Probably because it is much easier to write or broadcast  a "just my interpretation based on my political leanings and life perception" story. If you have the time and information-seeking wherewithal, go to http://www.supremecourt.gov/ to read the entire ruling with all the justices' opinions. Perceive and interpret for yourself. Remember to search for the actual case called NATIONAL FEDERATION OF INDEPENDENT BUSINESS et al v. SEBELIUS, SECRETARY OF HEALTH AND HUMAN SERVICES et al.

Meanwhile, we at Rise Health are also appreciating Abraham Whaley of ManageMyPractice.com for writing out a "what it means" column. Just like Abe, we like to keep our posts informative and actionable, not political. We publish his  post here, directing you to the link below.
Healthcare Reform: Talking to Patients and Staff | Manage My Practice.com